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Monday, May 2, 2011

prayer warriors needed right now!!!

Prayer warriors neede for this sweet family and their little girl, Lucy, right now!

Dear Friends:  Need some prayer warriors right now.  Lucy has just been admitted to St. Jude for observation.  Her sodium levels are too low, potassium too low and generally feels like crap.  We had to cancel radiation today and that is not good.  She has received a large amount of sodium cholride, but her levels are still not rising.  They will be running tests and trying different treatment options tonight.  We need this to clear up before tomorrow so that she can have her radiation treatment.  We are not in crisis mode by any means, but there is an issue that needs to be resolved.  Thank you in advance for your prayers. 
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lifting Lucy up in prayer right now because no baby should ever be this sick!!

paula

Fast Five

i went and saw Fast Five this weekend with the fam.
you would think that would be a harmless enough movie to go see right? (as far as babyloss goes)
maybe for some, but not for me.
part of the plot line is about someone announcing their pregnancy.
really, in a movie about stealing cars and running from "the law", someone has to announce their pregnant?
and i love these movies. i really do!! why did they have to go and ruin it for me? (can you say self absorbed?)
i was having a great time, looking at all the pretty boys and fast cars, and then WHAM!!! someone announces their pregnant......and they celebrate and raise a glass.
and now i am sad because even though i have been pregnant 7 times, we have never made it a celebration.
the reasons for this are.....
the first time i was still in high school.....
and all the other times we weren't trying and were scared as hell because we had lost the first.
so now in the middle of my happy, mindless movie, i am sad and jealous of a fictional character.
could life get any better???
why yes it can!!
because the happy, hopeful me is still buried somewhere deep inside me and she likes to rear her ugly head and say things like.....
if we have anymore babies we are going to name them dominic and xander after vin diesel characters.......
WHAM!!!! again.......
with the way things are going i have very little hope left....(can you run out of rainbows??? i have already used 2, is there a limit??)
and just so the movie ends on a high note for me (because it is all about me, right??)
i get to sit through the end with my eyes closed because now we have a big pregnant belly on the screen.....
and you see that was my dream this time....
i wanted too much.....
because i wanted it all..
i wanted the belly and belly pictures
i wanted happily ever after
i wanted to bring home a baby to hold in my arms and watch grow
i wanted happiness and all i seem to be left with is a whole bunch of sadness.....
and did my husband reach out and take my hand???
did he ask if i was ok???
did he give me a hug afterwards and tell me he loved me???
nope because i should be over "this"
and the person i use to refer to as my rock, has now gone and squashed me flat.



and just in case i haven't already made this all about me........please pray for us. we are not in a good place right now and neither of us seem to know how to get back to one.


paula

Friday, April 29, 2011

just saw this on book face (as my hubs calls it) and thought it was just so right.

From Resilience by Elizabeth Edwards:

"If I had lost a leg, I would tell them, instead of a boy, no one would ever ask me if I was 'over' it. They would ask me how I was doing learning to walk without my leg. I was learning to walk and to breath and to live without Wade. And what I was learning is that it was never going to be the life I had before."


paula

Friday, April 22, 2011

Help!

yesterday marked 8 months since we said goodbye to wyatt.
wednesday i got an email from sarah saying "It is our honor to add Wyatt to the well list.  We build wells in order of when they are added to the list, as we receive the funds."
she also went on to ask,"if there is a Bible verse that is special to you, please send it as well so that we may include it on the well."so this is where i need help.....
i have come across many bible verses that have spoken to me, but i want to make sure to get just the right one for wyatt.
does anyone have any ideas?
what is your favorite verse in memory of your child?

some of my ideas...

The LORD gave and the LORD has taken away;
may the name of the LORD be praised.”Job 1:21
(is that too bleak and sad?)

People make plans in their minds, But the Lord decides what they will do..." ~ Proverbs 16:19
( i like this verse but i think it may be more of a verse for me and not really honor wyatt's memory)

Psalm 31:7 “I will be glad and rejoice in your love, for you saw my affliction and knew the anguish of my soul.”
(again i think this one may speak more for me)

Luke 18:16 - But Jesus called for them, saying, "Permit the children to come to Me, and do not hinder them, for the kingdom of God belongs to such as these.
(am afraid this one is used a lot and i do want something original??? for my sweet boy)


All the days ordained for me were written in your book before one of them came to be.~Psalm 139:16~
(i like this one)

The LORD is just! He is my rock! There is nothing but goodness in Him. Psalm 92:15NLT
(i think this is another good one)


"Lead a life worthy of your calling, for you have been called by God. Be humble and gentle. Be patient with each other's faults because of your love. Always keep yourselves united with the Holy Spirit and bind yourselves together with peace." Ephesians 4:1-3 NLT
(and i think this is really nice, especially in speaking to others. but i am not sure how it suits my memory of wyatt???)

I prayed for this child, and the LORD has granted me what I asked of Him.
1 Samuel 1:27
( i think this may be one of my favorites......i prayed for wyatt, before i ever became pregnant with him.....and the lord granted me what i asked of him.though i do believe next time i may be a little more specific in the for how long department. but i will be forever grateful for my sweet wyatt and the 13 days i got to spend with him)

 

paula

Wednesday, April 20, 2011

it has been a hard couple of weeks. i feel like i have fallen off the map and may never find my way to climbing back on.

but i have been reading everyone's blogs and i think for awhile i will just be posting on this blog what has been helping me from other's.

here is one of my favorites from the past week. (i want to print it out and mail it to everyone i know. but that would be weird, right???)

I saw this article written by Corinne O'Flynn on Honoring Our Angels who saw it on the Rowan Tree Foundation and loved it. Honoring Our Angels says, "it's raw and full of intense emotion and I'm sure so many of us can relate." (i totally did)


Ramblings of a Grieving MotherPDFPrintE-mail
WRITTEN BY CORINNE O'FLYNN  

Do you know me?  I used to be so cheerful, the proud owner of an easy smile.  I was optimistic and upbeat; pointing out the silver lining behind each of the dark and looming clouds.  I was walking across the bridge into motherhood, and felt full of dreams for this baby that was growing inside me, our baby, my baby.

Do you remember me?  I used to love going out with my friends, chatting on the phone, hanging out doing nothing, dishing over the gossip columns.  I was the one who laughed the hardest when we saw that show together.  I was the one who would spend hours shopping with you to find that perfect dress for your special event.

I was the one.  I was.
Then my baby died and everything changed in that moment.  When my baby died, that person I used to be died too.  I just vanished into a cocoon of self preservation, learning how to survive the incredible pain.  I didn't ask for this to happen, who could?  I also had no idea I would lose so much of myself to this.  Not unlike a butterfly whose metamorphosis happens while safely tucked away, I emerged completely changed.  Unrecognizable.
When my baby died a part of me was torn away.  My happiness went on hiatus; my optimism took the first train out of town.  My smile disappeared.  My soul became brittle and felt like it would just shatter if anything touched too forcefully.  My skin tingled with a strange numbness as I walked around as this new person in this new life. I was a stranger, even to myself.  Feeling weighted by a heavier outlook, I find myself in the mirror and do a double-take with these new eyes.
My husband and I are trying to reconnect.  It is not divorce or separation that we are resisting; we are actually becoming acquainted to our new selves.  There is so little to say, yet we have been through so much and it feels like everything has changed.  We feel tighter and closer, but so hurt and broken that we can’t find the words. 
My family asks where I went, and wonders when I will be coming back.  My friends don't seem to recognize me in my new self.  It is as though I fell into a magic sleep for a thousand years, and when I woke up everyone was speaking a different language.  I feel like I have morphed into a square peg in a round-hole world; I just can't make myself fit into the same old places where I used to be so at ease.
My job has become difficult for me.  I have lost focus, lost my drive.  My ability to concentrate has been taken over by the part of my mind that commands me to grieve.  Without a baby to care for, I am no longer eligible for maternity leave.  I don’t have the luxury of wealth to stay home indefinitely, and so I am back to work shortly after my baby died with no idea what I am doing.
People are moving on in their lives, and new concerns are demanding their attention.  They look back at me and wonder why I am “still” so sad.  For me it is like time has stopped.  Weeks and months later, it is as though my baby just died.  I watch the clock to mark time that used to be measured by calendar.  It has been exactly 24 hours since you died, exactly one week, two days, and three hours, exactly two weeks and five hours.  I can’t help it.  You died on a Saturday, and every Saturday marks an anniversary for me.  I can’t imagine being ‘years’ away from your death.
I don't especially like this new me.  At this time while my loss is still so new, it is all I can do to face the raw and unending pain.  Nothing seems to make any sense.  My entire awareness is wrapped around my empty belly, my empty arms, and the dreams for the child that will never be.  The future feels dead for me.
I struggle with the people closest to me whose expectations of my coping skills are not being met.  They express remorse that the old me has gone.  They wish for me to snap out of it.  They actually express anger that I am being such a drag.  I can see so clearly that they simply don't understand, even so, it is hard not to be resentful when they don’t seem to care to. 
They misread my reasons for declining those baby shower invitations, they don’t see that my reasons have nothing to do with my love for the mother-to-be and everything to do with my own survival.  Even putting these thoughts into written word feels dramatic, self-centered, and overdone.  But, it is so very real for me right now.  Part of me is embarrassed that I feel this way, and part of me is furious that I have to explain it at all.  The people who would require the explanation should already understand.  I suppose their expectations are not the only ones being left unmet.
Everywhere I go I am surrounded by pregnant women whose confidence about their baby and their future is impenetrable.  Their shopping carts are overloaded with baby things, and they chat happily about the names they are contemplating for their baby.  She is hoping for a girl, that one really wants a boy.  I contemplate screaming into their faces that the gender of their baby is the least of their concerns as I wonder if she will be like me; if hers will be the next baby to die.
My girlfriend told me today that she is pregnant.  I want to be happy for her, but her news makes me feel like my heart has been torn out again.  I swallow the rock in my throat and feel like I have been kicked in the stomach.  I have constant anxiety that the mailbox will bring word of the surprise shower for her.  Every time the phone rings I worry that they will mention our friend’s happy news.  I think about what to say so I can appear normal when the baby conversations start up.  I want to remind them that my baby died, but I also feel like I shouldn’t have to.  I am afraid for my friend with my new perspective on pregnancy, petrified of offending her in her blissful state, but still unable to take part in all of the celebration and the joy.
I know it sounds truly insane; I actually feel like I have gone crazy.  But there it is, and as much as I wish it were different, it is me.


what is so weird about this article is.....
that wyatt also died on a sat.
that my sil just told us she was expecting.
and that my husband was surprised when i told him that i love her (sil) and wish only the best for her but just can't be around her right now.

this new world i live in is sooooo weird, so topsy-turvy.
nobody "gets me" anymore, not even him.
paula

Friday, April 8, 2011

prayers

if you are the praying kind or the good thoughts kind.....whatever. please take some time for this little guy today. his name is bennett and he is having surgery today. he was wyatt's neighbor in the nicu and he has come soooooo far.


paula

Thursday, April 7, 2011

welcome to my pity party...

tomorrow is his day.
will any body but me remember.
i have read a couple of different blogs recently related to jealousy over the love some moms are shown.
and i have to agree.
nobody in my world will probably do or say anything to me. it will just be another day to them.
not to me though.
needing to not feel so utterly alone in this right now.
the jewelery i have for wyatt.... my "armor" if you will....was all purchased for me by me.
it is just all so damn depressing.
can't wait for my sleeping pill to kick in so i can at least forget about this for at least 6 hours.

paula :(